WINDHAM – Rep. Patrick Corey (R-Windham) announced his
legislation, LD 84, Resolve, Directing the Department of Health and Human
Services To Allow Spouses To Provide Home and Community-based Services to
Eligible MaineCare Members has been signed into law by Governor Janet
Mills. The new law directs the Maine Department of Health and Human Services to
request a federal waiver allowing spouses employed as personal support
specialists to provide services to their spouse.
For Rep. Corey, this was his second attempt to pass
legislation in response to the plight of constituents, John and Linda Gregoire
of Windham. John has amyotrophic
lateral sclerosis (ALS), often referred to as Lou Gehrig’s Disease and requires
round the clock care from his wife Linda.
"John and Linda Gregoire really opened my eyes to the
hardships that a spouse with a debilitating disease can place on a family,”
said Rep. Corey (R-Windham). "While getting spouses paid for caregiving
through Medicaid seemed pretty straight forward, it took two attempts, strong
advocacy from many interests, and some really creative thought regarding who
will employ this new workforce to keep the costs down. LD 84 brings us one
step closer to allowing spouses to be paid for caregiving activities.”
"Linda slowed down her work schedule more and more,
since I was diagnosed with ALS in 2007," said John Gregoire. "Today,
she's only able to work away from home one day a week. The reality is however,
with my need for 24/7 care, she's working more hours when we don't have outside
help."
Allowing
spouses to be paid through MaineCare fills a significant need in the home care
workforce while providing financial benefit to the state. Avoiding the cost of
nursing home care for one-year equals paying for three years of personal support
specialist services.
According to the Maine Wire, “the average annual cost of a private room in an assisted living facility or
nursing home is $59,892 and $108,405, respectively, in Maine. Under the current
reimbursement rate for services under Section 19, if an individual required 40
hours of care per week, the state would spend less than $38,500 to reimburse
for these services.”
Additional Benefits:
Low wages and the demands of direct care jobs both
contribute to a shortage of direct care workers in Maine. Spouses were often
filling these lapses in care, making it difficult for them to retain gainful
employment.
Patients in this program already qualify for expensive
long-term care. Keeping nursing home eligible people at home saves the state
money.
Families will be able to stay together. Previously, anyone
could be paid to provide care except a spouse. In some cases, it resulted in the
dissolution of marriages.
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